思考与写作hanselman.com
如何应对极度的身体疼痛
How to deal with extreme physical pain
2020 — 2022，它一次次回到首页
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导读
这篇文章从 Scott Hanselman 的亲身经历出发，谈如何面对极端身体疼痛，并延伸到慢性疼痛者的日常处境。标题和评论显示，它引发了许多长期疼痛患者的共鸣，也涉及旁人该如何回应这类痛苦。
为什么经久不衰：疼痛体验普遍却难以言说，文中的经验与评论区真实故事让读者获得理解、共情和实用视角。
HN 评论精选
慢性疼痛患者常被无效建议包围，旁人应先问对方是否需要建议。
我有会引发疼痛的慢性病。我学到的一件事就是尽量不告诉别人，宁可显得无礼，也不愿解释我在疼。不是不感激同情，也不是羞耻，而是不想再听“怎么让疼痛消失”的建议。我受够了建议，也试过、查过、看过医生；你阿姨30年前类似病例怎么好转的，对我来说只是轶事。神奇的偏方也听腻了。有研究可以，我或许几个月后会读，但我不是小白鼠，不会明天就改治疗方案。抱歉发泄一下，这有时比疼痛还累。
banana_giraffe查看英文原文
I have a chronic condition that causes pain. One of the things I've learned, in as much as I can, is I don't tell anyone. I'd rather be rude than explain I'm in pain. Not because I don't appreciate sympathy. Not because I'm ashamed. It's because I don't want your advice on how to make the pain go away or to deal with it. I'm tired of advice. I've got too much advice. I try things, I research issues. I talk to doctors. What your Aunt did that had a similar case to me 30 years ago to get better isn't interesting, it's an anecdote. I'm tired of hearing of woo remedies. If you have research, fine, I'll read it. One day. Maybe months from now. I am not your guinea pig. I am not going to change my treatment regimen based off your advice tomorrow. Sorry, had to get that off my chest. It's tiring. More so than the pain sometimes.
持续剧痛会改变人的情绪、性格和生计，需要理解而非打扰。
我正在应对慢性疼痛，它正在终结我的职业生涯，未来还能多活跃也不确定。我的情况是自身免疫性的，身体从内到外摧毁自己：关节炎、银屑病、胃肠问题。恶化得够快，我正被转院治疗并准备退役（军队，驻海外）。昨天很糟，外出办事时全部发作，几乎把我击倒；因为没有车，还得走几公里回去。持续疼痛如何改变一个人很难描述，要一直努力不变成混蛋，因为“天哪，别管我”的冲动太强。这让人 overwhelmed 和沮丧，更别说还得考虑怎么维持生计。
CobaltFire查看英文原文
I’m dealing with chronic pain that’s bringing my current career to its end. I’m still unsure how active I’ll be able to be in the future due to it. In my case it’s autoimmune; my body has decided it’s going to destroy itself from the inside out. Arthritis, psoriasis, GI issues. It’s getting worse fast enough that I’m being transferred to a hospital for care (Military, stationed overseas) and preparation for retirement. I had a bad day yesterday; out taking care of errands to leave and everything flared. Sometimes there’s no discernible reason. It damned near floored me, but since I don’t have a vehicle I had to walk the couple kilometers back. It’s hard to describe how much ongoing pain changes who you are. It’s a constant struggle to not be an asshole because DAMNIT JUST LEAVE ME ALONE. It’s overwhelming and demoralizing. That’s before we get to the questions of what can you still do to make ends meet.
突然撤掉止痛会带来难以想象的剧痛，让人对疼痛者更有共情。
几年前我摔倒摔断了肘部，急诊手术把它拼回去。术后回家，脖子上挂着一个“球”，通过导管把止痛药输入体内。几小时后我坐在躺椅上，麻醉医生打电话来问疼痛程度。我说“不痛”。他问阀门设多少，我说9。他说“哇，你得调低！这个速度10小时就用完了，你需要撑至少48小时”。我挂电话后，作为昏沉的工程师，把它调到2，打算疼了再调高。45分钟后，我经历了最剧烈的疼痛：咬牙、出汗、流泪。我立刻调到10，疼痛又持续了两小时。我是无神论者，但那两小时我简直在求神。疼痛消退后我回电，他说“哦对，你应该慢慢调低”。好处是我现在非常能共情说自己疼的人。如果那疼痛持续，我什么都会吃，海洛因也行。
f2000查看英文原文
A few years ago I fell and broke my elbow. It was a mess and had to have emergency surgery to put it all back together. After surgery I'm sent home with a "ball" around my neck that is a reservoir for some pain meds that are being fed into my body via a catheter that was threaded into a vein in my neck. So I am sitting on my recliner a few hours after the surgery , awake but groggy. Anesthesiologist calls me on my cell phone to check in on me. So the pain med ball has a valve on it calibrated from 1 to 10. It's on like 9. He asks me how the pain level is. I say "no pain". He say's "great, what's the setting our your valve" I say 9. He says "whoa! you need to turn that down! At that level it will be used up in about 10 hours and you need it last for at least 48 hours" I say "okay." He then hangs up. So being a groggy engineer, I think "okay, I will dial it down to like 2 and then as pain arrives adjust up to needed level" So I turn it down to 2. About 45 minutes later I am in the most excruciating pain I have ever experienced. Think teeth clenching. Sweating. Tears. I immediately turn the dial up to 10. The pain lasted for 2 hours. I'm an atheist, but let me tell you I was coming to Jesus in those two hours. Once the pain subsided, I call him back. He says "Oh yeah, you should have slowly backed down on the dial." Upside is that I have a lot of empathy for folks who say they are in pain. Seriously, if that pain had continued I would have taken anything, Heroin, whatever!!!
长期疼痛会扭曲疼痛感知和就医判断，但不应拿自己的经历否定他人。
我整个童年都承受大量持续疼痛，后来仍有较轻的持续疼痛，基本是全身持续痛加剧烈发作。医生很早就告诉我父母不要给我阿片类，说会影响发育、失效并成瘾。所以我和疼痛的关系有点扭曲：我基本像作者描述的那样观察疼痛，但不总是体验它，尤其是熟悉的疼痛。年轻时一个不健康的应对方式是让疼痛更糟，这样缓解时相对舒服。这也让我处理其他健康问题更困难：我不太能关联疼痛信号，急诊时也常拒绝止痛药，而这不一定对（骨折可以忍，阑尾炎晚期大概还是想要药）。但我一直认识到，别人经历疼痛——无论情绪还是身体——和我经历过什么无关。不能因为我感受过更糟，就认为别人的疼痛不真实或影响不大。
ehnto查看英文原文
I dealt with a large amount of constant pain for my entire childhood, and ongoing but to a lesser extent. It was essentially persistent pain with spikes of immense pain, all over my body. My doctor very early on told my parents not to give me opioids, as they would ruin my development, become ineffective and I would end up addicted. So my relationship with pain is very skewed, I do essentially what the author describes, observe it but I do not always experience it, especially for stuff I have felt before. One of my less healthy coping mechanisms when I was young was to make the pain worse, so that the relief was comparatively comfortable. It has made navigating unrelated health issues a bit more challenging, as I can't relate to pain cues very well, and I tend to refuse pain relief meds in emergency situations which is not always the right choice (broken bones fine, final stages of appendicitis, probably want the meds) One thing that I have sort of always recognized though is that the way others experience pain, emotional or physical, is unrelated to what I have been through, which I think everyone could realise. Just because I have felt worse does not mean someone elses pain is not every bit as impactful to them.
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